Quality of Life Associated with Pulmonary Vascular Disease

Preoperative pulmonary venous obstruction affects long-term outcome for survivors of total anomalous pulmonary venous connection repair

Paul M. Kirshbom, Richard J. Myung, J. William Gaynor, Richard F. Ittenbach, Stephen M. Paridon, William M. DeCampli, Tom R. Karl, Thomas L. SprayChildren’s Hospital of Philadelphia.United States Annals of Thoracic SurgeryAnn thorac Surg 2002; 74: 1616-1620DOI: 10.1016/s0003-4975(02)03935-8 AbstractBackground: Early outcomes after repair of total anomalous pulmonary venous connection continue to improve; however, little information is available […]

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Impact of persistent pulmonary hypertension and oxygenation on brain injury in neonates with neonatal encephalopathy treated with therapeutic hypothermia

Keira C. Kilmartin, Asim Al Balushi, Gabriel Altit, Anie Lapointe, Emmanouil Rampakakis, Stephanie Barbosa Vargas, Julie Maluorni, Pia WintermarkMontreal Children’s Hospital and McGill University. National Heart Centre. University of Montreal. Canada and Oman Journal of PerinatologyJ Perinatol 2023; DOI: 10.1038/s41372-023-01805-2 AbstractObjective: To investigate the effects of persistent pulmonary hypertension (PPHN) and oxygenation on outcome of neonates with

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Efficacy of a Commercial Physical Activity Monitor in Longitudinal Tracking of Patients With Pulmonary Hypertension: A Pilot Study

Eliana Rosenzweig, Gerson Antonio Valencia Villeda, Sarah Crook, Fatima Koli, Erika B. Rosenzweig, Usha S. KrishnanColumbia University Irving Medical Center and New York Presbyterian Hospital. Orlando Health Arnold Palmer Hospital for Children.United States Texas Heart Institue JournalTex Heart Inst J 2023; 50DOI: 10.14503/THIJ-22-7866 AbstractBackground: Patients with pulmonary arterial hypertension have quality-of-life limitations, decreased exercise capacity, and poor

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Failure to tolerate continuous subcutaneous treprostinil in pediatric pulmonary hypertension patients

Julia McSweeney, Elizabeth Colglazier, Jasmine Becerra, Brienne Leary, Kathleen Miller‐Reed, Stephen Walker, Katy Tillman, Melissa Magness, Michelle Ogawa, Whitney Bannon, Tisha Kivett, Emma O. Jackson, Anne Davis, Cathy Shepard, Susan Richards, Elise Whalen, Shannon Engstrand, Zachary Di Pasquale, Jean A. ConnorBoston Children’s Hospital and Harvard Medical School. UCSF Benioff Children’s Hospital. Children’s Hospital of Colorado.

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Growing up with Idiopathic Pulmonary Arterial Hypertension: An Arduous Journey

Tanguy Dutilleux, Nesrine Farhat, Ruth Heying, Marie-Christine Seghaye, Maurice BeghettiUniversity Hospital Aachen. Centre Hospitalier Universitaire de Liège. University Hospital Leuven. Children’s University Hospital Geneva.Germany, Belgium and Switzerland Pediatric ReportsPediatr Rep 2023; 15: 301-310DOI: 10.3390/pediatric15020026 AbstractIdiopathic pulmonary arterial hypertension (IPAH) is an uncommon and severe disease. We report the case of a 7-year-old boy investigated for cardiac

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Is This My Home? A Palliative Care Journey Through Life and Death in the NICU: A Case Report

Aurora Walters, Jordan GrosseChildren’s Hospital ColoradoUnited States Advances in Neonatal CareAdv Neonatal Care 2020; 20: 127-135DOI: 10.1097/ANC.0000000000000697 AbstractBackground: With advancements in neonatology, patients in the neonatal intensive care unit (NICU) are living in the hospital with complex life-limiting illnesses until their first birthday or beyond. As palliative care (PC) becomes a standard of care in neonatology, a

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Idiopathic Pulmonary Arterial Hypertension in Paediatrics Represents Still a Serious Challenge: A Case Series Study

Pier Paolo Bassareo, Paola Argiento, Colin Joseph McMahon, Esme Dunne, Kevin Patrick Walsh, Maria Giovanna Russo, Michele D’AltoMater Misercordiae University Hospital. Children’s Health Ireland at Crumlin. University College Dublin. Università della Campania “Luigi Vanvitelli” and Ospedale Monaldi. Ireland and Italy ChildrenChildren 2023; 10: DOI: 10.3390/children10030518 AbstractIntroduction: Paediatric pulmonary hypertension (PH) represents a heterogeneous illness that is responsible

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Outpatient respiratory outcomes in children with BPD on supplemental oxygen

Julianne R. McGlynn, Brianna C. Aoyama, Amanda Martin, Joseph M. Collaco, Sharon A. McGrath-MorrowChildren’s Hospital of Philadelphia and University of Pennsylvania. Johns Hopkins University School of Medicine.United States Pediatric PulmonologyPediatr Pulmonol 2023; 58: 1535-1541DOI: 10.1002/ppul.26356 AbstractIntroduction: Preterm children with bronchopulmonary dysplasia (BPD) frequently require supplemental oxygen in the outpatient setting. In this study, we sought to determine

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Health-related quality of life and parental depression in children with pulmonary arterial hypertension

Fatma H. Canbeyli, Vildan Atasayan, Semiha Tokgoz, Fatma S. Tunaoglu, Ayse D. Oguz, Bulent Celik, Serdar KulaKırıkkale University. Umraniye Training and Research Hospital. Gazi University.Turkey Pediatric PulmonologyPediatr Pulmonol 2022; 57: 544-550DOI: 10.1002/ppul.25777 AbstractBackground: Impaired health-related quality of life (HRQoL) is a common problem in pulmonary arterial hypertension (PAH), but there is limited data on HRQoL in children

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Assessment of Quality of Life in Children With Pulmonary Hypertension Using Parent and Self-report Questionnaires

László Ablonczy, Zita Mayer, Orsolya Somoskövi, Andrea Berkes, Orsolya Csenteri, Eva Kis, György S. ReuszGottsegen National Cardiovascular Center. University of Debrecen Clinical Center. Semmelweis University.Hungary Transplantation ProceedingsTransplant Proc 2022; 54: 2598-2602DOI: 10.1016/j.transproceed.2022.10.051 AbstractPulmonary arterial hypertension (PAH) is a progressive disease characterized by elevation of pulmonary vascular resistance and right ventricular failure. By using advanced therapies to reduce mortality, clinicians focus on improving functional status and quality of life (QOL).

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