Quality of Life Associated with Pulmonary Vascular Disease

The Role of Specialty Pediatric Palliative Care in Pulmonary Hypertension: A Case Series

Sandra Aziz, Joshua Roy, Elise Whalen, Hidhy Paulose Varghese, Jill Ann JarrelBaylor College of Medicine and Texas Children’s Hospital.United States Journal of Palliative CareJ Palliat Care 2026; DOI: 10.1177/10966218261494685 AbstractComprehensive care of pediatric Pulmonary Hypertension (PH) patients may include multiple subspecialty and supportive services, including specialized pediatric palliative care (PPC). PPC is interdisciplinary, patient- and

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Sport, exercise, and physical activity in children with cardiovascular disease. A Clinical Consensus Statement of the European Association of Preventive Cardiology (EAPC) of the ESC, the Association of Cardiovascular Nursing & Allied Professions (ACNAP) of the ESC, and the Association for European Paediatric and Congenital Cardiology (AEPC)

Monica Tiberi, Flavio D’Ascenzi, Elena Cavarretta, Jessica Orchard, Mark Abela, Maria Bäck, Martin Bahls, Frank Casey, Silvia Castelletti, Guido Claessen, Fabrizio Drago, Thijs M. H. Eijsvogels, Gherardo Finocchiaro, Sabiha Gati, Henner Hanssen, Martin Halle, Viviana Maestrini, Aneil Malhotra, Nicola Mochi, Jan Müller, Josef Niebauer, Rhoia Clara Neidenbach, David Niederseer, Michael Papadakis, Antonio Pelliccia, María Sanz-de

Sport, exercise, and physical activity in children with cardiovascular disease. A Clinical Consensus Statement of the European Association of Preventive Cardiology (EAPC) of the ESC, the Association of Cardiovascular Nursing & Allied Professions (ACNAP) of the ESC, and the Association for European Paediatric and Congenital Cardiology (AEPC) Read More »

Neonatal Course and Long-Term Outcome in Children With Congenital Chylothorax

N. Beullens, K. Smets, M. De Lausnay, P. Schelstraete, S. Van Daele, J. Willekens, J. Van Dorpe, H. SchaballieGhent University Hospital. Belgium Pediatric PulmonologyPediatr Pulmonol 2026; 61: DOI: 10.1002/ppul.71820 AbstractBackground: Congenital chylothorax is a rare pulmonary developmental disorder with high associated morbidity and mortality. A limited number of cases have been described, and clinical manifestations and outcomes

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Sports and Supervised Exercise Programmes for Children and Young Adults with Pulmonary Hypertension. 2026 Consensus Statement from the European Pediatric Pulmonary Vascular Disease Network (EPPVDN) and the Association for European Paediatric and Congenital Cardiology (AEPC)

Dan-Mihai Dorobantu, Alexander van de Bruaene, Werner Budts, Barbara Cifra, Mark K. Friedberg, Peter Fritsch, Michael Khoury, Jan Müller, Alexander Opotowsky, Shubhayan Sanatani, Craig Williams, Georg Hansmann, Guido E. PielesUniversity Hospitals Bristol and Weston NHS Trust and University of Exeter. University Hospitals Leuven and University of Leuven. Hospital for Sick Children and University of Toronto.

Sports and Supervised Exercise Programmes for Children and Young Adults with Pulmonary Hypertension. 2026 Consensus Statement from the European Pediatric Pulmonary Vascular Disease Network (EPPVDN) and the Association for European Paediatric and Congenital Cardiology (AEPC) Read More »

Respiratory-Related Hospital Admissions in Children and Young Adults With Down Syndrome

Emily DeBoer, Kristine Wolter-Warmerdam, Rebecca Bernstein, Arwen Jackson, Jennifer Maybee, Karen Kelminson, Francis HickeyUniversity of Colorado and Children’s Hospital Colorado.United States Hospital Pediatrics Hosp Pediatr 2026; DOI: 10.1542/hpeds.2025-008731 AbstractBackground: Children with Down syndrome (DS) have an increased risk for hospitalization and intensive care owing to respiratory illnesses; however, current research does not specify which co-occurring diagnoses increase

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The Pulmonary Hypertension Global Patient Survey: Understanding the Invisible Burden of Paediatric Pulmonary Hypertension

Sadia Quyam, Sarah Drumm, Shiv Mungala, Katherine Bunclark, Gerald Fischer, Eva Otter, Hakim Ghani, Wendy Gin‐Sing, Luke Howard, Marcin Kurzyna, Pisana Ferrari, Lynsay Macdonald, Joseph Newman, Millicent Stone, Mark Toshner, Joanna Pepke Zaba, Maurice Beghetti, Shahin MoledinaGreat Ormond Street Hospital for Children and University College London. Pulmonary Vascular Research Institute. Royal Statistical Society. University of

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The relationship between muscle strength and oxygenation and activities of daily living in adolescents and young adults with pulmonary arterial hypertension

Jan Dik, Ceyhun Topcuoglu, Naciye Vardar-Yagli, Merve Basol Goksuluk, Ebru Aypar, Dursun Alehan, Melda SaglamHacettepe University. Munzur University. Sakarya University. Turkey Cardiology in the YoungCardiol Young 2026; DOI: 10.1017/S1047951125110895 AbstractPulmonary arterial hypertension leads to dyspnoea, fatigue, and oxygen desaturation, limiting activities of daily living and functional capacity. This study aimed to evaluate the impact of pulmonary

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Pulmonary arterial hypertension increases the risk of female sexual dysfunction: a systematic review and meta-analysis

Xiaoyu. Qiao, Danyan Su, Suyuan Qin, Lifeng Shang, Liu Luo, Yusheng PangFirst Affiliated Hospital of Guangxi Medical University and Pediatric Clinical Medical Research Center of Guangxi.China Journal of Sexual MedicineJ Sex Med 2025; DOI: 10.1093/jsxmed/qdaf294 AbstractBackground: An increasing body of research has investigated the sexual functioning status in women with pulmonary arterial hypertension (PAH); yet, the evidence

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Exploring Health-Related Quality of Life in Children With Pulmonary Hypertension

Jo Wray, Sadia Quyam, Holly Clisby, Vicky Kelly, Shahin MoledinaGreat Ormond Street Hospital for Children NHS Foundation Trust. Barts Heart and Thorax Centre Psychological Services.United Kingdom Pulmonary CirculationPulm Circ 2025; 15: DOI: 10.1002/pul2.70161 AbstractPulmonary hypertension (PH) in children requires complex medical management. Health-related quality of life (HRQoL) remains understudied in this population. During an 8-month period

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Global, Regional, and National Burden of Pulmonary Arterial Hypertension from 1990 to 2021 and Projections to 2040: A Systematic Analysis of Incidence, Mortality, and Disability-Adjusted Life Years

Lin-Ling Yu, Ding-Sheng Jiang, Xiong Wang, Ze-Min Fang, Wei-Hong Chen, JinZhu Zhao, Xin Yi, Wei LuTongji Hospital, Tongji Medical College and Huazhong University of Science and Technology. Chinese Academy of Medical Sciences. Renmin Hospital of Wuhan University. China Current Medical ScienceCurr Med Sci 2025; DOI: 10.1007/s11596-025-00108-1 AbstractObjective: Pulmonary arterial hypertension (PAH) poses a growing global health challenge,

Global, Regional, and National Burden of Pulmonary Arterial Hypertension from 1990 to 2021 and Projections to 2040: A Systematic Analysis of Incidence, Mortality, and Disability-Adjusted Life Years Read More »

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