Quality of Life Associated with Pulmonary Vascular Disease

Growing up with Idiopathic Pulmonary Arterial Hypertension: An Arduous Journey

Tanguy Dutilleux, Nesrine Farhat, Ruth Heying, Marie-Christine Seghaye, Maurice BeghettiUniversity Hospital Aachen. Centre Hospitalier Universitaire de Liège. University Hospital Leuven. Children’s University Hospital Geneva.Germany, Belgium and Switzerland Pediatric ReportsPediatr Rep 2023; 15: 301-310DOI: 10.3390/pediatric15020026 AbstractIdiopathic pulmonary arterial hypertension (IPAH) is an uncommon and severe disease. We report the case of a 7-year-old boy investigated for cardiac […]

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Is This My Home? A Palliative Care Journey Through Life and Death in the NICU: A Case Report

Aurora Walters, Jordan GrosseChildren’s Hospital ColoradoUnited States Advances in Neonatal CareAdv Neonatal Care 2020; 20: 127-135DOI: 10.1097/ANC.0000000000000697 AbstractBackground: With advancements in neonatology, patients in the neonatal intensive care unit (NICU) are living in the hospital with complex life-limiting illnesses until their first birthday or beyond. As palliative care (PC) becomes a standard of care in neonatology, a

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Idiopathic Pulmonary Arterial Hypertension in Paediatrics Represents Still a Serious Challenge: A Case Series Study

Pier Paolo Bassareo, Paola Argiento, Colin Joseph McMahon, Esme Dunne, Kevin Patrick Walsh, Maria Giovanna Russo, Michele D’AltoMater Misercordiae University Hospital. Children’s Health Ireland at Crumlin. University College Dublin. Università della Campania “Luigi Vanvitelli” and Ospedale Monaldi. Ireland and Italy ChildrenChildren 2023; 10: DOI: 10.3390/children10030518 AbstractIntroduction: Paediatric pulmonary hypertension (PH) represents a heterogeneous illness that is responsible

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Outpatient respiratory outcomes in children with BPD on supplemental oxygen

Julianne R. McGlynn, Brianna C. Aoyama, Amanda Martin, Joseph M. Collaco, Sharon A. McGrath-MorrowChildren’s Hospital of Philadelphia and University of Pennsylvania. Johns Hopkins University School of Medicine.United States Pediatric PulmonologyPediatr Pulmonol 2023; 58: 1535-1541DOI: 10.1002/ppul.26356 AbstractIntroduction: Preterm children with bronchopulmonary dysplasia (BPD) frequently require supplemental oxygen in the outpatient setting. In this study, we sought to determine

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Health-related quality of life and parental depression in children with pulmonary arterial hypertension

Fatma H. Canbeyli, Vildan Atasayan, Semiha Tokgoz, Fatma S. Tunaoglu, Ayse D. Oguz, Bulent Celik, Serdar KulaKırıkkale University. Umraniye Training and Research Hospital. Gazi University.Turkey Pediatric PulmonologyPediatr Pulmonol 2022; 57: 544-550DOI: 10.1002/ppul.25777 AbstractBackground: Impaired health-related quality of life (HRQoL) is a common problem in pulmonary arterial hypertension (PAH), but there is limited data on HRQoL in children

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Assessment of Quality of Life in Children With Pulmonary Hypertension Using Parent and Self-report Questionnaires

László Ablonczy, Zita Mayer, Orsolya Somoskövi, Andrea Berkes, Orsolya Csenteri, Eva Kis, György S. ReuszGottsegen National Cardiovascular Center. University of Debrecen Clinical Center. Semmelweis University.Hungary Transplantation ProceedingsTransplant Proc 2022; 54: 2598-2602DOI: 10.1016/j.transproceed.2022.10.051 AbstractPulmonary arterial hypertension (PAH) is a progressive disease characterized by elevation of pulmonary vascular resistance and right ventricular failure. By using advanced therapies to reduce mortality, clinicians focus on improving functional status and quality of life (QOL).

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Quantifying side effects and caregiver burdens of pediatric pulmonary hypertension therapies

Erik J. Nelson, Ella Cook, Samara Nelson, Rebecca Brown, Megan Pierce, Ashley Bangerter Seelos, Heather Stickle and Michael JohansenBrigham Young University. Utah State University. Indiana University School of Medicine. United States BioMed Central PediatricsBMC Pediatr 2023; 23: DOI: 10.1186/s12887-023-03860-2 AbstractBackground and objectives: Pulmonary hypertension (PH) is a rare, but serious disease among children. However, PH has been

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