Quality of Life Associated with Pulmonary Vascular Disease

Survival, morbidity, and quality of life in pulmonary arterial hypertension patients: a systematic review of outcomes reported by population-based observational studies

Stefan Reinders, Eva‑Maria Didden, Rose OngActelion Pharmaceuticals and Johnson and Johnson.Peru and Switzerland Respiratory ResearchRespir Res 2024; 25: DOI: 10.1186/s12931-024-02994-w AbstractBackground: Comprehensive summaries on real-world outcomes in pulmonary arterial hypertension (PAH)-a rare, incurable condition, are lacking. We conducted a systematic literature review to describe current survival, morbidity, and quality of life (QoL) outcomes in adult and pediatric […]

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Exploring Stress and Coping in Caregivers of Children with Pulmonary Vein Stenosis: A Mixed-Method Study

Mark Fuller, Jr., Christina Ireland, Rachel Zmora, Kathy JenkinsBoston Children’s Hospital and Harvard Medical School. Northwestern University Feinberg School of Medicine.United States ChildrenChildren 2024; 11: DOI: 10.3390/children11081008 AbstractBackground: This mixed-method study aims to identify and describe factors associated with acute and long-term parenting stressors and coping strategies in caregivers of children with intraluminal pulmonary vein stenosis

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The Characteristics and Two-Year Neurodevelopmental Outcomes of Home Oxygen Therapy among Preterm Infants with Bronchopulmonary Dysplasia: A Retrospective Study in a Medical Center in Taiwan

Han-Pi Chang, En-Pei Lee, Ming-Chou ChiangLinkou Chang Gung Memorial Hospital. Chang Gung University. Taiwan BiomedicinesBiomedicines 2024; 12:DOI: 10.3390/biomedicines12071564 AbstractHome oxygen therapy (HOT) is frequently used as a therapeutic strategy for children experiencing chronic oxygen dependency associated with bronchopulmonary dysplasia (BPD). Recent studies have highlighted substantial variations in the characteristics and outcomes of infants requiring oxygen, primarily

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Long-term impact of late pulmonary hypertension requiring medication in extremely preterm infants with severe bronchopulmonary dysplasia

Chan Kim, Sumin Kim, Hanna Kim, Jieun Hwang, Seung Hyun Kim, Misun Yang, So Yoon Ahn, Se In Sung, Yun Sil ChangSungkyunkwan University School of Medicine. Samsung Medical Center. Republic of Korea Scientific ReportsSci Rep 2024; 14:DOI: 10.1038/s41598-024-58977-w AbstractThis study investigated whether late pulmonary hypertension (LPH) independently increases the risk of long-term mortality or neurodevelopmental delay

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Health-Related Quality of Life Across the Spectrum of Pulmonary Hypertension

Aparna Balasubramanian, Brett Larive, Evelyn M. Horn, Hiliary M. DuBrock, Reena Mehra, Miriam Jacob, Anna R. Hemnes, Jane A. Leopold, Milena K. Radeva, Nicholas S. Hill, Serpil C. Erzurum, Erika Berman-Rosenzweig, Robert Frantz, Franz P. Rischard, Gerald Beck, Paul M. Hassoun, Stephen C. Mathai, PVDOMICS Study GroupJohns Hopkins University. Cleveland Clinic. Weill Cornell Medicine. Mayo

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Factors affecting length of stay according to bronchopulmonary dysplasia severity: a nationwide cohort study in Korea

Hye Mi Lee, Jeongmin Shin, Sae Yun Kim, So Young KimThe Catholic University of Korea. Republic of Korea World Journal of PediatricsWorld J Pediatr 2024;DOI: 10.1007/s12519-023-00794-8 AbstractBackground: Longer hospitalizations for preterm infants with bronchopulmonary dysplasia (BPD) delay developmental outcomes, increase the risk for hospital-acquired complications, and exert a substantial socioeconomic burden. This study aimed to identify factors

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Preoperative pulmonary venous obstruction affects long-term outcome for survivors of total anomalous pulmonary venous connection repair

Paul M. Kirshbom, Richard J. Myung, J. William Gaynor, Richard F. Ittenbach, Stephen M. Paridon, William M. DeCampli, Tom R. Karl, Thomas L. SprayChildren’s Hospital of Philadelphia.United States Annals of Thoracic SurgeryAnn thorac Surg 2002; 74: 1616-1620DOI: 10.1016/s0003-4975(02)03935-8 AbstractBackground: Early outcomes after repair of total anomalous pulmonary venous connection continue to improve; however, little information is available

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Impact of persistent pulmonary hypertension and oxygenation on brain injury in neonates with neonatal encephalopathy treated with therapeutic hypothermia

Keira C. Kilmartin, Asim Al Balushi, Gabriel Altit, Anie Lapointe, Emmanouil Rampakakis, Stephanie Barbosa Vargas, Julie Maluorni, Pia WintermarkMontreal Children’s Hospital and McGill University. National Heart Centre. University of Montreal. Canada and Oman Journal of PerinatologyJ Perinatol 2023; DOI: 10.1038/s41372-023-01805-2 AbstractObjective: To investigate the effects of persistent pulmonary hypertension (PPHN) and oxygenation on outcome of neonates with

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Efficacy of a Commercial Physical Activity Monitor in Longitudinal Tracking of Patients With Pulmonary Hypertension: A Pilot Study

Eliana Rosenzweig, Gerson Antonio Valencia Villeda, Sarah Crook, Fatima Koli, Erika B. Rosenzweig, Usha S. KrishnanColumbia University Irving Medical Center and New York Presbyterian Hospital. Orlando Health Arnold Palmer Hospital for Children.United States Texas Heart Institue JournalTex Heart Inst J 2023; 50DOI: 10.14503/THIJ-22-7866 AbstractBackground: Patients with pulmonary arterial hypertension have quality-of-life limitations, decreased exercise capacity, and poor

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Failure to tolerate continuous subcutaneous treprostinil in pediatric pulmonary hypertension patients

Julia McSweeney, Elizabeth Colglazier, Jasmine Becerra, Brienne Leary, Kathleen Miller‐Reed, Stephen Walker, Katy Tillman, Melissa Magness, Michelle Ogawa, Whitney Bannon, Tisha Kivett, Emma O. Jackson, Anne Davis, Cathy Shepard, Susan Richards, Elise Whalen, Shannon Engstrand, Zachary Di Pasquale, Jean A. ConnorBoston Children’s Hospital and Harvard Medical School. UCSF Benioff Children’s Hospital. Children’s Hospital of Colorado.

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